If you paid 23andMe to take a look at your DNA, maybe you wanted to know more than why you like cilantro or are related to Genghis Khan, maybe you thought you were advancing science.Last year Gizmodo published "Of Course 23andMe's Plan Has Been to Sell Your Genetic Data All Along" which seemed to fly under the radar:
Well, you are, in the same old way marketers have long advanced science - by selling information about customers. In this case, the DNA information of 1.2 million people, sold to more than 13 drug companies. Genentech paid $10 million to look at the genes of people with Parkinson’s disease.
Now, that's good, it isn't like a Parkinson's treatment is going to come from the government, but 23andMe customers paid to have their DNA info sold to other companies. That is a sucker move.
It isn't the first time 23andMe has boldly gone into an ethical gray area. In 2010, a lot of alarms were being raised about their conduct regarding informed consent, in 2013 the FDA threatened them with "seizure, injunction, and civil money penalties" because of their marketing claims...MORE
Today, 23andMe announced what Forbes reports is only the first of ten deals with big biotech companies: Genentech will pay up to $60 million for access to 23andMe's data to study Parkinson's. You think 23andMe was about selling fun DNA spit tests for $99 a pop? Nope, it's been about selling your data all along.Since 23andMe started in 2006, it's convinced 800,000 customers to hand over their DNA, one vial of spit at a time. Personal DNA reports are the consumer-facing side of the business, and that's the one we're most familiar with. It all seems friendly and fun with a candy-colored logo and quirky reports that include the genetic variant for asparagus pee.
But 23andMe wasn't going to find a big business by selling spit kits at the cut rate of $99. Instead, it's always been about enticing customers to hand over their DNA sequences along with details of their lives in a questionnaire to build a giant database—one that academic researchers and biotech companies alike are, well, salivating over.
Big data has—excuse the metaphor—been in 23andMe's DNA from the beginning. The company was founded by Anne Wojcicki, who's married to (though now separated from) Google co-founder Sergey Brin. Last year, Wojcicki told the New York Times that the inspiration for 23andMe came from watching Google: "I remember in the early days of Google, Larry [Page] would say, 'I just want the world's data on my laptop.' I feel the same way about health care. I want the world's data accessible."